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Table 2 Strategies to consider when implementing CBPR in BD research

From: Harnessing the potential of community-based participatory research approaches in bipolar disorder

Concern Potential solutions
Some types of conclusions and statements may be distressing for those with lived experience Consider in advance how to include information about protective factors in research designs; consider language in describing findings carefully; give advance warning to consumers about findings that might be on difficult topics, allowing choice about participation; consider whether findings are being presented in the most compassionate manner; plan for ongoing supervision to review and support individual’s response to difficult material
Those with BD may go through symptomatic periods that interfere with productivity Plan in advance for back-up and recovery time; consider working with teams of individuals rather than relying on a single person
Symptoms may emerge in a way that interfere with privacy or work flow Develop an understanding in advance of how symptoms will be discussed and managed if they are apparent in the workplace
Some with lived experience may have less scientific background than other team members Invest in training team members to understand the research process
Develop an understanding of key and valued roles that can be well-managed by those with less scientific background
Some with lived experience may have government benefits that be will be jeopardized if they work more than a certain number of hours, and others may prefer to maintain flexible hours Discuss levels of commitment and constancy in advance, and use this knowledge to plan work roles that will not suffer from part-time or varied time involvement
Organizations may not value lived experience as well as they do scientific experience, leading to the potential for inequality in promotions and career advancement over time Team leaders need to work at a systematic level to change organizational barriers