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Table 1 Interview results per patient

From: The perspectives of patients with lithium-induced end-stage renal disease

  No patients Patient 1 Patient 2 Patient 3 Patient 4 Patient 5 Patient 6 Patient 7 Patient 8 Patient 9 Patient 10
Stage 1: start of lithium therapy (LT)
Is patient aware of his/her BD diagnosis? 9/10 Yes Yes Yes Yes Yes Yes Yes No Yes Yes
Did psych explain diagnosis? 6/10 No No Yes Yes Yes Yes Yes No Yes No
Did psych discuss treatment options? 0/10 No No No No No No No No No No
Could patient and/or family indicate own views/standards relevant for treatment decision? 1/10 No No No No No Yes No No No No
Who took treatment decision? 10/10 Psych Psych Psych Psych Psych Psych Psych Psych Psych Psych
Satisfied with decision-making process? 3/10 No No No No Yes Yes No No Yes No
Stage 2: first signs of renal dysfunction/insufficiency
Did psych/GP explain clinical problem? 4/6 No n.a. No n.a. Yes n.a. Yes Yes Yes n.a.
Was neph involved at this stage? 4/6 Yes No ? No Yes No Yes No Yes No
Did psych/GP discuss alternatives to LT? 0/6 No n.a. No n.a. No n.a. No No No n.a.
Could own views/standards be given for consideration in treatment decision? 1/6 No n.a. No n.a. No n.a. No No Yes n.a.
Who took treatment decision?
Psych/neph/patient/shared decision
  neph n.a. Psych n.a. Psych n.a. Shared Psych Shared n.a.
Satisfied with decision-making process? 4/6 Yes n.a. ? n.a. No n.a. Yes No Yes n.a.
Stage 3: renal failure
Did psych/GP/neph explain situation? 8/10 Yes Yes Yes Yes Yes No Yes Yes Yes No
Did psych/GP discuss alternatives to LT/? 2/10 No Yes No No Yes No No No No No
Could own views/standards be given for consideration in treatment decision? 4/10 No No Yes No Yes No Yes No Yes No
Who took treatment decision?
Psych/neph/patient/shared decision
  Psych Psych Shared Psych Shared Psych Shared Psych Shared neph
Satisfied with decision-making process? 5/10 Yes No Yes No Yes No Yes No Yes No
Psychiatric items
Is patient able to explain severity of BD symptoms? 9/10 Yes Yes Yes Yes Yes Yes Yes No Yes Yes
Was indication for LT according to clinical guidelines? 8/10 No Yes Yes Yes Yes Yes ? Yes Yes Yes
Is patient able to explain why s(he) is/was taking lithium? 8/10 No Yes Yes Yes Yes Yes Yes No Yes Yes
Were side effects of lithium explained? 1/10 No Yes No No No No No No No No
Nephrological follow-up lithium
Was kidney function checked at least 2x/year? 8/10 Yes No Yes Yes Yes Yes Yes Yes No Yes
Were lithium levels checked every 6 months? 9/10 Yes Yes Yes Yes Yes Yes Yes Yes No Yes
  1. Psych psychiatrist, GP general practitioner, neph nephrologist, n.a. not applicable (e.g. because this stage//symptoms went undetected), ? unknown to patient, LT lithium therapy