From: The perspectives of patients with lithium-induced end-stage renal disease
No patients | Patient 1 | Patient 2 | Patient 3 | Patient 4 | Patient 5 | Patient 6 | Patient 7 | Patient 8 | Patient 9 | Patient 10 | |
---|---|---|---|---|---|---|---|---|---|---|---|
Stage 1: start of lithium therapy (LT) | |||||||||||
Is patient aware of his/her BD diagnosis? | 9/10 | Yes | Yes | Yes | Yes | Yes | Yes | Yes | No | Yes | Yes |
Did psych explain diagnosis? | 6/10 | No | No | Yes | Yes | Yes | Yes | Yes | No | Yes | No |
Did psych discuss treatment options? | 0/10 | No | No | No | No | No | No | No | No | No | No |
Could patient and/or family indicate own views/standards relevant for treatment decision? | 1/10 | No | No | No | No | No | Yes | No | No | No | No |
Who took treatment decision? | 10/10 | Psych | Psych | Psych | Psych | Psych | Psych | Psych | Psych | Psych | Psych |
Satisfied with decision-making process? | 3/10 | No | No | No | No | Yes | Yes | No | No | Yes | No |
Stage 2: first signs of renal dysfunction/insufficiency | |||||||||||
Did psych/GP explain clinical problem? | 4/6 | No | n.a. | No | n.a. | Yes | n.a. | Yes | Yes | Yes | n.a. |
Was neph involved at this stage? | 4/6 | Yes | No | ? | No | Yes | No | Yes | No | Yes | No |
Did psych/GP discuss alternatives to LT? | 0/6 | No | n.a. | No | n.a. | No | n.a. | No | No | No | n.a. |
Could own views/standards be given for consideration in treatment decision? | 1/6 | No | n.a. | No | n.a. | No | n.a. | No | No | Yes | n.a. |
Who took treatment decision? Psych/neph/patient/shared decision | neph | n.a. | Psych | n.a. | Psych | n.a. | Shared | Psych | Shared | n.a. | |
Satisfied with decision-making process? | 4/6 | Yes | n.a. | ? | n.a. | No | n.a. | Yes | No | Yes | n.a. |
Stage 3: renal failure | |||||||||||
Did psych/GP/neph explain situation? | 8/10 | Yes | Yes | Yes | Yes | Yes | No | Yes | Yes | Yes | No |
Did psych/GP discuss alternatives to LT/? | 2/10 | No | Yes | No | No | Yes | No | No | No | No | No |
Could own views/standards be given for consideration in treatment decision? | 4/10 | No | No | Yes | No | Yes | No | Yes | No | Yes | No |
Who took treatment decision? Psych/neph/patient/shared decision | Psych | Psych | Shared | Psych | Shared | Psych | Shared | Psych | Shared | neph | |
Satisfied with decision-making process? | 5/10 | Yes | No | Yes | No | Yes | No | Yes | No | Yes | No |
Psychiatric items | |||||||||||
Is patient able to explain severity of BD symptoms? | 9/10 | Yes | Yes | Yes | Yes | Yes | Yes | Yes | No | Yes | Yes |
Was indication for LT according to clinical guidelines? | 8/10 | No | Yes | Yes | Yes | Yes | Yes | ? | Yes | Yes | Yes |
Is patient able to explain why s(he) is/was taking lithium? | 8/10 | No | Yes | Yes | Yes | Yes | Yes | Yes | No | Yes | Yes |
Were side effects of lithium explained? | 1/10 | No | Yes | No | No | No | No | No | No | No | No |
Nephrological follow-up lithium | |||||||||||
Was kidney function checked at least 2x/year? | 8/10 | Yes | No | Yes | Yes | Yes | Yes | Yes | Yes | No | Yes |
Were lithium levels checked every 6 months? | 9/10 | Yes | Yes | Yes | Yes | Yes | Yes | Yes | Yes | No | Yes |