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Table 5 Information on articles that have examined the consequences of stigma in people living with bipolar disorders and their families

From: Stigma in people living with bipolar disorder and their families: a systematic review

 

Author, Year

Location of study

Study type

Sampling method

Sample size

Tools

Finding

1

Latifian et al. 2022a, b, c

Iran

Qualitative Method

(content analysis)

Purposive sampling

20 family members of bipolar patients

4 bipolar patients

3 mental health professional

Qualitative interviews

Social deprivation, emotional and sentimental excitement, objective and behavioral reflections, family solidarity threat, and separation from society were as the most important consequences of stigma in the family of bipolar patients

2

Kumar et al., 2020

India

Cross-sectional study

Random sampling

100 patients (50 patients with schizophrenia and 50 patients with bipolar disorder)

Quality of Life scale (WHO)

One of the most important consequences of stigma was disease relapse, facilitated by factors such as witnessing unfair behaviors by family members, the community, or the workplace

3

Quenneville et al., 2020

Switzerland

Comparative study

Available sampling

244 French-speaking patients (39 patients had a diagnosis of BPD, 136 had ADHD and 69 had BD)

The Brief Illness Perception Questionnaire

An increasing score of internal stigma influences quality of life and job performance in people living with bipolar disorders

4

Bhattacharyy a et al., 2019

India

Cross-sectional study

Available sampling

62 bipolar patients

Mental Illness (ISMI) scale

Rosenberg Self‑esteem Rating Scale (RSES)

World Health Organization (WHO) QOL‑BREF

Stigma causes people living with bipolar disorders to experience low self-esteem and a poor quality of life

5

Au et al., 2019

China

Cross-sectional study

Random sampling

115 bipolar patients with

Self-Stigma of Mental Illness Scale (C-SSMIS)

Functional Assessment Short Test (FAST)

Stigma Coping Orientation Scale (SCOS)

People living with bipolar disorders employ strategies such as avoiding others and social isolation to deal with stigma. Decreased self-esteem is the last phase in self-stigmatization and the most important phase in determining psychosocial performance

6

Post et al. 2018

Austria

Comparative study

Purposive sampling

60 outpatients with bipolar I disorder

and 77 healthy subjects from the general community

Views on Manic Depression Questionnaire

Quality of life was significantly associated with resilience, internal stigma, and residual symptoms in people living with bipolar disorders. Even during recovery, people living with bipolar disorders experience a much poorer quality of life and lower resilience compared with healthy individuals

7

Grover et al. 2016

India

Cross-sectional study

Purposive sampling

185 bipolar patients

Bipolar Recovery Questionnaire

People living with bipolar disorders, internal stigma was seen in 28%, the experience of discrimination in 38.9%, experienced stigma after hiding from others in 28.6%, and social isolation in 28.6% of the patients. Regarding participation, about two-fifths of the patients revealed minimal activities. Finally, high levels of stigma were directly related to reduce mean life expectancy

8

Noack, Kirsten et al., 2016

Canada

Qualitative Method

Purposive sampling

29 bipolar patients

Qualitative interviews

Rosenberg Self-esteem Rating Scale(RSES)

Stigma significantly decreases the participation of people living with bipolar disorders in society, making it difficult for them to acquire credible information about the disease, even via online resources

9

Sadighi et al., 2015

Iran

Cross-sectional study

Available sampling

126 bipolar patients

The Burden Assessment Schedule (BAS)

Stigma in people living with bipolar disorder has remarkable effects on the quality of life of these people and reduces their psychosocial performance and self-esteem

10

Karidi et al., 2015

Greece

Cross-sectional study

Random sampling

120 patients with schizophrenia and BD

Internalized Stigma of Mental Illness scale

Stigma itself led to social deprivation and poor performance in individuals, and the fact that psychiatric disorders have a direct and profound effect on self-stigma

11

Mileva et al. 2013

Canada

Cross-sectional study

Random sampling

392 bipolar patients

(178 people from Argentina and 214 people from Canada)

Stigmatizing Experiences (ISE)

Stigma Experiences Scale (SES)

Stigma Impact Scale (SIS)

More than 50% of respondents believed that stigma had affected their life quality and reduced their self-esteem. For a better understanding of stigma in people living with bipolar disorders and their families, we must first know how they experience the phenomenon, and ISE is a valuable and reliable tool allowing us to reach this goal with high certainty in different cultures

12

Michalak et al., 2011

Canada

Qualitative Method

Purposive sampling

32 bipolar patients

Qualitative interviews

Arts-based method (graphic recording)

Internal stigma could significantly affect self-management by people living with bipolar disorders. A reduction in self-management following internal stigma in these patients leads them to constantly regain their lost identities and roles in society

13

Vázquez et al. 2011

Three Latin American countries (Argentina, Brazil, and Colombia)

Cross-sectional study

Random sampling

241 bipolar patients

(Argentina = 96, Brazil = 60, Colombia = 85)

Day’s Mental Illness Stigma Scale

A high perceived stigma score was directly and significantly correlated with a low-performance score

14

Brohan et al., 2011

13 European countries

Cross-sectional study

Available sampling

1182 people with bipolar disorder or depression

The Internalized Stigma of Mental Illness Scale (ISMI)

The Boston University Empowerment Scale (BUES)

The Perceived Devaluation and Discrimination Scale (PDD)

21.7%, 59.7%, and 71.6% of people living with bipolar disorders experienced self-stigma, resistance to stigma, and discrimination, respectively

15

Perlick et al. 2007

UK

Cross-sectional study

Random sampling

Caregivers of 500 people with bipolar disorder

Standardised Affective Disorder Evaluation

Mini International Neuropsychiatric Interview

The Clinical Monitoring Form

Caregivers' perceptions of stigma may negatively affect their mental health by reducing their coping effectiveness

16

Perlick et al. 2001

UK

Cross-sectional study

Available sampling

264 people with bipolar disorder

Schedule for Affective Disorders and Schizophrenia, Lifetime Version (SADS-L)

The Brief Psychiatric Rating Scale (BPRS)

The Social Adjustment Scale (SAS)

Concerns about the stigma associated with mental illness reported by patients during an acute phase of bipolar illness caused poorer social adjustment seven months later with individuals outside the patient's family